Growing Lilly

[WomenInc. Magazine, January 01, 0001] At seven years old, Lilly Stiernagle maintains a busy schedule of school, dance lessons, skiing, sports and traveling. Before she was born, a level 2 ultrasound at Abbott Northwestern Hospital showed she was missing the femur bone in both legs. Lilly's family shares what it's like growing up with PFFD, proximal femoral focal deficiency, a non-genetic condition so rare that there has never even been a scientific study.